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Further research is necessary to optimize the use of this kit and to document related outcomes. The CCK was feasible and perceived to be effective for symptom control and easy to use. All family members reported that the CCK was easy to use and 98% found it to be effective for symptom management. Atropine drops were the most commonly used, followed by morphine and paracetamol. A majority (76%) only used one medication from the kit.
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Thirty-three (67%) reported that they used the CCK. Caregiving Strain Mediates the Relationship Between Terminally Ill Patients Physical Symptoms and Their Family Caregivers Wellbeing: A Multicentered Longitudinal Study. We conducted a telephone survey of bereaved caregivers to assess CCK's feasibility (proportion of use), pattern of use, perceived benefits and challenges, and need to transfer to emergency department at the end of life.įorty-nine caregivers completed the survey. Each CCK includes morphine and haloperidol ampoules, lorazepam tablets, atropine drops, and paracetamol suppositories given either through sublingual or rectal route. The aim of this study was to evaluate the feasibility of the CCK from the perspective of bereaved caregivers.ĬCKs were handed out to caregivers for patients who were entered into the care for the dying pathway (CDP). All rights reserved.We devised a comfort care kit (CCK) consisting of nonoral and nonparenteral rescue medications for caregivers to use at home for symptom control in imminently dying patients who have lost their ability to swallow. Clinicians may minimize this regret by facilitating a shared understanding of the disease and prognosis, advising families explicitly when to talk based on terminal awareness, providing continuous emotional support, and validating their decision on talking about death.Įnd-of-life discussion bereaved family cancer regret.Ĭopyright © 2017 American Academy of Hospice and Palliative Medicine. Three process factors ("prognostic disclosure to patient", "upsetting of patient and family", and "family's sense of uncertainty about when to act based on terminal awareness" ) and an outcome factor ("having achieved a good death" ) contributed to the regret of talking insufficiently.Ī third of bereaved families of adult cancer patients regretted not having talked about death sufficiently. Exploratory analyses identified the underlying structures of process, option, and outcome subscales of factors contributing to regret.Īmong 678 bereaved families (response rate 68%), 224 (33%) regretted not having talked about death sufficiently, whereas 40 (5.9%) conversely regretted having talked about death. We conducted a nationwide survey of 999 bereaved families of cancer patients admitted to 133 inpatient hospices in Japan and surveyed families' regret on talking about death. To explore the prevalence of a regret of not having talked about death with a deceased loved one among bereaved family members of adult cancer patients, and to systematically explore factors contributing to their regret.
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Little is known about how often and which bereaved families regret not having talked about death with their deceased loved one. Talking about death is an important issue for terminally-ill cancer patients and their families.